From the article:
“If you had a terminal or disabling illness, how desperate would you be to find a cure? Would you fight to try experimental medications, even if there was no proof that they would work?
If your answer is yes, then I know how you feel.
Four years ago, I was suddenly hit with a rare variation of an eye disease that has no cure and ends in blindness. A treatment for age-related macular degeneration – the much more common form of the disease that affects 180 million people in the world today -was finishing the FDA’s safety testing phase. The drug halted the progression of the disease for virtually every patient in the trial and caused major improvement in over half. Patients who had been blind were now reading and driving. But I had no way to access the treatment.”
Click below to read the entire version of Cathy’s op-ed at oregonlive.com: